HOME SWEET HOME

Praise God.....We are home!



Ron was finally discharged from the hospital on Thursday at 8pm in the evening. It was a very long day!

He did not receive his retuxamab infusion until 4pm that day ..it had to run three hours....thus the delay in getting home.

There were still a lot of other loose ends that had not been taken care of until that day ...so further delays....

But.....we are home now and that is all that matters.

Ron says if he has to feel bad or uncomfortable...he would prefer to do it in the comforts of home rather than in the hospital.

We did not arrive home until 11pm ....as you can imagine ...we were quite exhausted.

Fortunately, his family had arrived to the house early....stripped the beds and put fresh sheets on for us....that made things great for the night.

Thomas was waiting up for us, too. Life could not have been better at that moment to see him and hold him in our arms.

It was so nice to put him to bed and read a bedtime story just like so many times before.

We were all home..once again.



The weekend was quite busy and hectic...had a lot of cleaning up to do around here. We still had Christmas decorations to put away and crafts I had started to work on for the holiday season. I am still trying to unpack suitcases.



I have also been busy with phone calls to the insurance company trying to iron out some issues still pending....coordinating home health care and physical therapy. Waiting on Ron's medical supplies to be delivered for his wound care and for his bathroom needs....nothing arrived over the weekend. The wound care supplies finally were delivered yesterday. It was a good thing the wound care nurse at the hospital sent me home with several days worth of supplies to hold me over. His bathroom equipment has not yet arrived. I finally received a call today from the medical supply store....they had not delivered anything because they do not think the insurance company will cover it...I explained it is a medical necessity for Ron...I asked them to deliver it and I will deal with the insurance company later. But, they cannot deliver until tomorrow and I have to take Ron back to Tucson tomorrow for his Retuxamab infusion....they will not deliver is no one is home because I have to sign a document that states I am responsible if the insurance does not cover the items. So, I will just go down there myself and pick the items up...Ron will finally be able to take a nice bath and use a regular toilet for a change!



Several doctors appointments were scheduled this week, too. He saw his cardiologist yesterday and had an EKG done. He is scheduled for an echo on Friday. He will be getting them done every week. He has to go to Tucson tomorrow for his IV infusion. Hopefully, they will get him set up at a facility here for next week...which will be his last infusion.

Next Tuesday ...he will need to follow up with his cardiologist to review the echo he is going to have done on Friday.

I still have to call the renal doctors and kidney tranpslant doctors to see when they want to see him again. Unfortunately, they do not have a clinic here for Ron to see them at so we have to travel back to Tucson for the appointments. I believe they want to see him two weeks post discharge. I will find out more today.



I am scheduled to go back to work next week...the 14th. The home health care nurse will be coming to see Ron Mon-Fri....she will take care of his wound care in the morning and draw his labs as needed. This will leave me only taking care of the wound in the evenings.

His Physical Therapist will be coming three days a week to work with him.

Our project the rest of the week and weekend is to organize things in locations that Ron can reach them at...meds...food items in the refrigerator ...his clothes...etc.

He can walk some ...with his walker...around the house ...but for the most part he gets around in his wheelchair or his scooter.



It will be a bit scary leaving him for the first time next week....but I know he will be in the Lord's hands and all will go well.



I apologize for the delay in getting this blog out....I just had not had time to get the laptop hooked back up or a few minutes to spare these last few days.

All in all...it has been crazy.....but we are home!!!!!!!!!



All the Glory to God for getting us back home safe and continuing to help Ron's body heal.