A BUSY DAY INDEED

As expected...today has been a busy day for Ron. He was taken down for dialysis first thing this morning. He was not able to have breakfast because later in the day he would need to go down for his permanent vas cath to have dialysis as outpatient. He is having this done right now. After they are done...he will need to go to radiology for an X-ray to make sure the placement is correct. Once he is back up in his room...hopefully, he will have time to eat something before he has to have his echo done. I don't think he will be up for any physical therapy today...poor guy. I have been coordinating with Dr. Smith and the kidney doctors a game plan for when we go home. He will start back up on the Retuxamab infusions and the photopheresis which was just approved with our insurance. She is trying something totally new for Ron in terms of maintenance therapy. It has never been done this way with anyone before. If it works ...it will be something she will definitely publish in the medical journals. Let us hope for the best and Ron will open many doors for patients to come just like him in the future. His infusion treatments will only consist of one infusion per month vs once a week for four weeks. His photopheresis will also be on a small scale than the 6 month standard treatment. He will have fewer treatments per month. He will continue to have them until Dr. Smith feels he may not need them anymore. Anything is worth trying at this point for him. We have to do whatever we can to alleviate any further antibody rejection. Tomorrow he will have his renal gram. Hopefully, it will give us some helpful information. The kidney doctors are working to get in touch with the dialysis center that Ron was utilizing before his transplant and try to get him set up there again once we go home. I am off to buy him an Oreo cooking shake so that he has it when he gets back to his room.