COUNTING DOWN THE DAYS

Ron had his renal gram and his echo on Wednesday. I don't know what the results of the echo were. His renal gram did show and confirmed decreased function in the kidney but it was not conclusive if this could be due to rejection of the kidney or just acute failure due to the trauma from the infections. Some of the kidney doctors were going to review the renal gram themselves since the report did not give much information and give us their thoughts. I do not know as of yet if the kidney transplant team will want to do a biopsy. I did not see any of them yesterday or today.

Ron had dialysis this morning...it was a long morning. After that we had time for lunch and then it was time for physical therapy. He walked well today...he had a much faster pace...which we were all very impressed with. He walked another 40 ft.

We saw Dr. Smith just before dinner....she started him on vacomycin ..oral medication since his cultures have continued to test positive for the C. Diff bacteria...so he was obviously not responding to the antibiotic they have had him on. Hopefully, the vancomycin will work...as it is the only other antibiotic to treat this type of bacteria. He started taking it Wed. night.

Well...we are obviously not heading home tomorrow or over the weekend. So...we are hoping for Monday to bust out of this place. It will be four weeks on Saturday that we have been here....much too long once again.

The kidney doctors have already made arrangements for him for dialysis as an outpatient when we get home. He is getting set up for his photopheresis and his retuxamab infusions and we will continue with the home health care and PT we had when we were first discharged.
Hopefully, the transition will come smoothly.

Thomas is doing well....he is enjoying school and is anxiously waiting for us to come home.
I told him tonight mom and dad will be home in a few days and he asked ..." when they are all done with dad ...you will come and pick me up?"....I assured him I would...and that we would all be back in our own house real soon....


Thanks again for all the well wishes but more importantly for the love and the prayers everyone has extended to us ....we could not have endured this long journey without you all and the work of our Lord through you and the strength he gives us each and every day. All the glory is his.....