We had quite a cold snap here in town overnight. We woke up to quite a bit of rain and the Catalina mountains are covered in snow. It was an incredible view from Ron's room. Too bad the blinds are installed within the glass pain of the windows or I would have been able to get some great pictures.
The rain clouds have completely covered them now. Much more rain is on the way.
The physical therapist had us up at 8am sharp today. He came in to get Ron up into the wheel chair again. This time a sliding board was used. He did fairly well....with our help of course. It is easier for him to scoot into it rather than trying to get him to stand and pivet into it...more chance of him falling this way until he regains more strength.
We ended up leaving the floor and going down to the cafeteria for breakfast. It was nice for him to do something different. He wanted to take a stroll to the gift shop as well...he ended up buying another "painted ponie" ...he collects them.
Once we made our way back to the room the therapist came back to help him back into bed...same process of scooting.
He was pretty exhausted after all that.
His wound care went well today. The area seems to be narrowing...signs of healing...however, we need the base of the wound to start healing a little more quickly than the rest of the wound. It does no good if the outer and upper area of the wound begins to heal and close if the base is still not healing....they would end up having to reopen the wound if that happens. We started an application of a new wound gel last night and again today. The plan is to use it through the weekend and have the doctors check it again on Monday to see if the gel has made any difference. Our hope is that it will.
Everything else has remained the same today. No other changes to report.
Ron's edema continues to return when he is sitting up. His feet are quite puffy right now and very sensitive to the touch.
It will be so much better once he is walking again to redistribute the fluid that keeps building up at his lower extremities.
Of course, the chronic back pain is always there. It never gets below a pain level of 4 or 5 on a scale of 1-10 (even with pain meds). He has never been at zero. Until I can get him upright and eventually treatment for his herniated disc...the pain is going to be continuous in this area.
But, right now the focus is just getting him walking...we will tackle the back at a later time...for now, he relies on a lot of pain meds to get him through the day.
Thomas is also battling another double ear infection. His third in two months. If this one does not clear up ...we will have to start looking at putting tubes in his ears. I was not happy to hear this but it is what it is. Everyone I have spoken to were so happy once their kids had them done...they say it made a world of difference.
He is scheduled to see the doctor again on the 25th. If the fluid in his ears has not cleared up...then an appointment will need to be made with an ear specialist.
One more thing to add to my "to do" list.
We miss him terribly ...there are no words to express how difficult it is to be without him...my heart aches to be with him every day ...to put him to bed...to read stories to him ....to give him his baths ...to make his meals and listen to his funny conversations and those that are not so funny ...they are quite "grown up" for a three year old.
I don't think he will be up this weekend but soon...we hope.
The weekend is here once again....we will continue on our usual routine of exercises and passing the time as best we can.
As I close this blog...staff are running down the hall back and forth...there is a patient coding at the end of the hall from Ron's room. I pray they save whomever it is. It is something we have come to see quite a bit here these past two months. I know the feeling of this all too well...I pray for the family as well.
Have a safe and happy weekend...hug your loved ones every chance you get....to parents...enjoy and embrace every moment with your babies...do not take your time with them for granted.
"1Those who live in the shelter of the Most High will find rest in the shadow of the Almighty. 2This I declare about the Lord; He alone is my refuge, my place of safety; he is my God, and I trust him." Psalm 91:1-2
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1 comment:
I love snow! I'm glad you were able to see it even from far away! I'm praying for all of you. I can't imagine being away from your child for the length you have been - my prayers for healing for your son's ear infections - they can be so painful. My dad's been in the hospital 3 weeks and I know at times it feels like years let alone the months you both been in the hospital. I am encouraged by your steadfastness. I love your verse today! What a wonderful God who does give us rest in His shadow!
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